I could be wrong, but does anyone else think this is the longest week ever? I know - it is only Tuesday!
Ryder is overall doing well. His lung is still inflated and he is now on the Sipap just "when sleeping". So mostly at night and at random unpredictable intervals in the day, due to the fact that he is a baby and sleeps whenever he feels like it, or is just plain bored. Hopefully that plan will be more organized tomorrow going to Sipap at night only and on the nasal canula during the day. He is still on milrinone but based on the current attending's plan may go back off it on Thursday. He is still on continuous feeds instead of the boluses, so he has to go back to boluses before trials at bottles again. Not sure when that will be...he seems overall to be doing really well. I wish I didn't feel so frustrated then, but that is hard to avoid seeing as the main reason this week seems so long is that it already happened over a month ago. Same sipap, milrinone wean, continuous feeds. Because of the deja vu, we still have no even guestimate plans on when he can try to go off more "flow" on his nasal canula, when he can try to eat again, when he will get his pre-Glenn cath or when we can take Ryder home. No clue, no plans, no countdown. Longest week ever.
But enough venting...Ryder is gaining some fab cheek-flab...LOVE. He is so funny...he can sense a respiratory therapist a mile away and gives them the most dramatic evil eyes I think any 3 1/2 mo old could possibly convey. For everyone else, BIG BIG smiles. He is loving the attention. He has found his right hand and thinks it is AWESOME! The left one? Doesn't care...righty is magical.
Ryder can tolerate almost any torture but hates being cold -- chlorhexidine bath wipes = brrrr and cries. But we do like a staph-free baby. He is loving staring at himself in the mirror this week too - less with the Sipap on but at least the sight of the mask doesn't make him wail anymore. I really wish I could know exactly what he thinks of Addy...
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| Addy, please don't pick up your brother, K? Good thing those chairs allow you to strap baby down... |
To my favorite hubby...happy #8! So glad we got to sneak in a date night amidst the ICU time, however weird it is to have an ICU nurse babysit...in the ICU. Thank you for being you and thank you for: letting me change the sheets as much as I want, giving the dogs baths, always letting me have my 1 favorite wine glass and for never asking where the cookies are after I make the cookie dough. Thanks most of all for taking chances with me...
Goodnight, from room 16...beep beep beep....beep beep
I'm going to venture a guess that he thinks Addy is just the coolest, most amazing big sister he could ever imagine. I mean, she's bigger than him, but not BIG. So she's totally fascinating.
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