We have been fortunate enough that one of us it able to be at the hospital the good majority of the time...sometimes working (or sleeping) but at least here. This is for 2 reasons: 1) To see Ryder and 2) To keep from getting a phone call. It has worked well so far- I think we have only gotten maybe 2 other phone calls in the last 103 days...about 40 minutes after I left the hospital Friday morning Ryder was satting only in the 50s and not looking so good. A CXR showed his right middle lobe (lung) was collapsed (atelectasis). This is probably owing to a nice dose of morphine and extra ativan he got the night before, because really Thursday night was good - he drank almost an ounce out of his bottle.
He had to go back on bipap and milrinone for the morning to early afternoon but later in the day his CXR looked better, oxygen was higher and a new ECHO, ultrasound, etc. showed there was nothing else going on. That night, worse CXR again so back on bipap. He doesn't like bipap though so after 2 hours of screaming it was removed. One thing about warriors is that they like to do things their own way, and he was not feeling the bipap. So, yesterday he came back off milrinone and started some more breathing treatments and back on feeds. The CXR is still not looking the best, but he is overall doing much better.
Grandpa came up to visit this weekend to keep Addy entertained while we were short-staffed (work) and she had a blast eating pancakes and swimming in a rather ginormous baby pool that now takes up most of our deck. She LOVES it! And - I think Grandpa may be headed to Target tonight to get his own copy of Tangled...it's ok dad, it's seriously a good movie!
Overall, today has been good...as you can see...despite Ryder getting a round of vaccines!!
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| My babies!! |
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| No way any other big sister was THIS happy to hold her baby brother. |
What precious photos of the two of them. I'm so sorry Friday sucked -- prayers that it was a blip that never happens again! You guys are amazing!
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