We were all set for Ryder to move up to the 4th floor on Thursday. How exciting, and terrifying!!
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Seriously, how handsome is this little butterball?!? |
Just waiting to get a bed...then the oxygen sats were lower...and then lower...and back on the nasal canula. It was such a bummer. It had been 2 + weeks without oxygen. So Ryder stayed in the ICU that night, he had a low grade temp, and then the coughing started. He had an ok day Friday but was a little more cranky Saturday. We thought it was from his vaccinations which he had just gotten. He did get to eat some sweet potatoes and green beans (and then tried to eat anything else he could get anywhere near his mouth) which was fun -he has clearly been working on those fine motor skills and can do his own oral care with a mouth swab. In fact, I have no doubts he could brush his own teeth already if he had any. Grandma GG gave him some bananas which he loved on Saturday night but his cough got worse and he had to get put back on a lot more oxygen. The last 2 nights he has been miserable, waking up every hr coughing, feeling yucky, congested and getting puffy. His viral PCR came back positive for rhinovirus and enterovirus. And today our little warrior was intubated for...a cold.
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Ryder, fighting the mean viruses |
Despite our scrupulous hand-washing and the every-other-night alcohol-wiping down of his room he couldn't avoid the worst infection risk...US. It can always be worse I know, he could have something irreversible, could have had respiratory failure after he was transferred out of the ICU or at home, but nothing breaks your heart like watching your sweet little angel suffer and get tubed after you couldn't stop loving on him and gave him a cold. Because I live in a state of perpetual denial I just came to terms about an hour ago that he wasn't coming home for Thanksgiving. I really believed it was going to happen this time. But there is still 42 days until Christmas...so if you have the time for a prayer tonight and/or a letter to Santa, all we want for Christmas is our baby boy under the Christmas tree. Wouldn't that just be perfect? It wouldn't be the first miracle for sure. And to my Ryder, I am so sorry peanut. I am sorry beyond words.
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