For Ryder's fan club, sorry for the delay in updates! Even considering all of the [relatively] small hurdles recently, overall Ryder has has a great week. Since our last post, Ryder was on a diuretic drip for a week, and this had great results - a normal little peanut head. He weaned down on his drips again and back up and back down, etc. He is very sensitive to his sedatives and has had some withdrawal issues. But he seems to be back at a happy level of happy drugs today, and that's all that matters! He had another line infection and was restarted on antibiotics. But now he has a clean, new picc line. He has been off the ventilator again for a few days and so far, so good. He is on a little enteral (gut) feeds, going very slow, and he is back to working with physical and occupational therapy. It is actually really amazing to see how well he is doing holding his head up given all this time back in bed! But, of course he always has been an amazing little warrior.
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| Mommy finally jumped on the iphone bandwagon, hence the instagram pic flurry... |
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| Cuddling with mommy |
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| Sleepy face. |
And tomorrow, September 28th, will mark this little man's
7 month birthday. Can you believe that?? Just incredible. The big question - when oh when will this little man come home? I asked last week if I could plan to buy him a halloween costume for trick-or-treating at HOME...the reply was that I certainly could get him a costume, but he would probably be wearing it here.
The lesson of the day: Many are the plans in a [mommy's] heart, but it is the Lord's purpose that prevails. - Proverbs 19:21. At least I still get to pick out a costume for him...hmmm...it is going to be a tough choice.
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