Age 24 weeks - fetal cardiac cathterization with attempted stent placement and atrial septoplasty
Age 0 days - entered the world stable despite "highly lethal" HLHS with intact atrial septum
Age 7 days - Norwood surgery with BT shunt
Age 7/1/2 days - shock and placement on ECMO
Age 9 days - intraventricular hemorrhage
Age 9 1/2 days - shock when removed from ECMO
Age 10-12 days - acute renal failure
Age 20 days - right atrial thrombus
Age 27 days - sternal closure
Age 28 days - improved cardiac function, improved tricuspid regurgitation, improved blood pressures, smaller atrial thrombus, NO intraventricular hemorrhage, back on enteral feeds, weaning off drips, hydrocortisone AND the ventilator. And listening to mommy read Peter Pan.
The hat says it all.
Happy 1 month birthday little warrier. So blessed to hold your little hand every day!
He is miraculous, that's for sure. Thinking all the love and prayers are his pixie dust. Happy birthday, Ryder!!!
ReplyDelete28 days old!! Amazing how strong you are little warrior! I've only met you once...but think of you a hundred times a day! Love YOU Ryder James!!
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