Well, it has been a week. Ryder has been busy...he is nearly off his milrinone as it appears the ventilator took a lot of stress off of his heart, he is back on a lot of enteral (oral) medications instead of IV, he finished antibiotics (again) and he is now doing pretty well on feeds into his little gut too. He's been asleep for much of this but we have seen a few smiles and he wakes up and grabs at his toys (and his breathing tube) for a little while each day...though most of his time is spent looking a bit like this...
and doing a little bit of this...
His big sister has been busy too. Between the zoo, nature center, park(s), bike riding, book store, swimming, etc. she can hardly find time to get baby bitty down for her nap. She started preschool today and had a great morning. They have just a couple hours a day the first week and move to half day next Monday. She was very happy to announce to her teacher that she brought an extra change of clothes "just in case I potty in my pants." Very practical this girl!
And so the next surgery - rescheduled for Ryder's 6 month birthday, August 28th. So now we wait, with hope...and patience (I mean after an EPIC fail on my part trying to get 14 people to give us a surgery date all day Friday , then paging the palliative care doctor Friday evening to get someone to give me a date, then complaining to anyone who would listen all weekend that we didn't know the date for sure then trying convince the surgeon today to do the surgery before next Tuesday - NOW with patience).
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